On 3rd and 4th of November 2022, we had our biannual meeting of the SELNET consortium in Costa Rica. Please find attached the minutes of the consortium meeting. We sincerely appreciate the great effort made for traveling there and the great discussion of tasks.
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Instituto de Investigación Sanitaria Fundación Jiménez Díaz (IIS-FJD) is a non-profit foundation constituted by Fundación Jiménez Díaz University Hospital (FJD) and Universidad Autónoma de Madrid (UAM) in 2009. It has a well-established record of commitment to research, teaching, and clinical care-related activity. These three pillars guide the work carried out in the IIS-FJD, whose goal is to foster excellence in research, scientific and technological understanding, teaching, and training in the hospital. IIS-FJD participates in several national and international network as ECRIN –The European Clinical Research Infrastructure Network for Clinical Trials and Biotherapy, EATRIS– The European Advanced Translational Research Infrastructure in Medicine and BBMRI –Biobanking and Biomolecular Resources Research Infrastructure.
Founded in 1994, the Institute Alexander Fleming is the first private institution in Latin America devoted to prevention, diagnosis and integral treatment of patients with cancer. The Institute is associated to the Faculty of Medicine of the University of Buenos Aires in order to fulfill high academic and scientific goals.
This is an integrated Cancer Center for diagnosis, treatment, education and research, located in Sao Paolo, Brazil. It has achieved a leading position in the generation of scientific research in the field of oncology and is recognized internationally as a reference institution in the fight against cancer.
Sarcoma Patients EuroNet Association (SPAEN) is the international network of sarcoma, GIST and desmoid patient advocacy groups. It was founded in April 2009 with the aim of extending information, support and advocacy to patient organizations for the benefit of sarcoma patients across of Europe and internationally. SPAEN is a key partner of SELNET by increasing the visibility of sarcoma patients.
The Spanish Group for Research on Sarcomas (Grupo Español de Investigación en Sarcomas, GEIS) is a non-profit medical research association dedicated to improve the outcome of Spanish sarcoma patients through research and dissemination. Since its foundation, GEIS has carried out more than 60 multicentre clinical studies in sarcomas at both national and international levels.
The National Institute of Neoplastic Diseases, better known as INEN, is a Peruvian public hospital managed by the Ministry of Health of Peru. This hospital provides health services including detection, diagnosis, treatment and rehabilitation to cancer patients.
Stablished in 2012, The Foundation aims to support cancer patients, based on the principles of solidarity, work, love and respect for others. FUNDAEVI reaches this goal trough the development of projects and the promotion of healthy lifestyles in the entire population of the province of Heredia (Costa Rica).
The National Institute of Cancerology is a decentralized organization of third level, linked to the Ministry of Health, which provides specialized medical care to cancer patients, involved also in Basic and Clinical Research. The INC is the coordinator of 25 State Cancer Centers (CEC) in Mexico, offering a unique possibility for designing common programs and strategies for prevention, early detection and better cancer control at a national level.
The Centre Léon Bérard (CLB) is part of the twenty French Comprehensive Cancer Centers, providing a global management of cancer patients. The Centre is an international recognized reference cancer Centre with three essential missions: Care, Research and Education in order to improve the quality and accessibility of care for cancer patients. CLB develops an excellence and multidisciplinary research and is also a reference center within the European Reference Network (ERN) EURACAN.
The Rizzoli Orthopedic Institute (IOR) is the only Italian orthopedic public hospital recognized as a National Institute for Research and Health Care (IRCCS). Its high quality healthcare is the result of intense scientific research with the aim to transfer these research results into clinical practice. The Institute founded and chair the Italian Sarcoma Group (ISG) and is a reference center in sarcoma within the European Reference Network (ERN) EURACAN.
Founded in 1928, Fondazione Istituto Nazionale Tumori (INT) based in Milan, is the largest comprehensive cancer centre in Italy. INT aims to provide the highest quality of care and to pursue preclinical and clinical research to translate innovation into better management for cancer patients. INT coordinates the Italian Rare Cancer Network (RTR), works with the Italian Sarcoma Group, and is a reference center in sarcoma within the European Reference Network (ERN) EURACAN.