OVERALL OBJECTIVE
The overall objective of the SELNET project is to create a European and Latin American multidisciplinary network of clinical and translational specialists to improve diagnosis and clinical care in sarcomas, with the aim of validating a collaborative model replicable in other rare tumors and in other countries of Europe and the Community of Latin American and Caribbean States.
SPECIFIC OBJECTIVES
The above-mentioned overall objective will be sought by:
- Implementing sarcoma reference centers (RCs) and reinforcing sarcoma patient referral policies to RCs.
- Analyzing the national healthcare barriers hindering proper diagnosis and clinical management of sarcoma patients.
- Achieving the adoption and adherence to clinical practice guidelines (CPG) in soft tissue sarcomas (STS), bone sarcomas (BS) and gastrointestinal stromal tumors (GIST) to ensure high quality patient management.
- Promoting continuing medical education (CME) in sarcomas through seminars, workshops, and training programs.
- Creating national and international pathological and molecular sarcoma diagnosis networks to avoid misdiagnoses, and enabling clinical case discussions in multidisciplinary sarcoma tumor boards (MSTB) and collaborative reviews via a web-based second opinion platform.
- Conducting an international registry-based observational study in adult STS, BS, and GIST to assess patient clinical management quality and generate evidence related to prognostic factors.
- Developing a sarcoma translational research program focused on the strategic creation of intercontinental multicenter biobanks, preclinical models, and the conduct of an international registry-based translational study with drugs in adult rare sarcomas.
- Attaining commitment from national healthcare systems and policy makers to implement sarcoma care centralization, empower clinical and translational research, and improve access to new drugs, with the goal of eventually enabling all rare cancer patients to receive the highest quality of care.
